ME (cfs): Helpful Hints for Daily Living contains a collection of practical hints for those suffering from Myalgic Encephalomyelitis (cfs), including information on services and resources, with contact details to support and assist sufferers, their carers, families, friends, and health care practitioners.
What is ME (cfs)?
Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome, is a highly debilitating disorder due to an inability to produce energy on demand, which is exacerbated by mental and physical exertion resulting in post exertional malaise (PEM).
Other characteristics include pain, impaired memory and concentration, impaired cardiovascular function, gut disorder, sensory dysfunction such as noise/light intolerance, and balance disturbance.
The “Science for Patients” project is a collaboration between Science Alliance and the Dutch “ME/CVS Vereniging”. Prof. Dr. Kenny De Meirleir talks on many ME topics in their web seminars project here.
Who suffers from ME (cfs)?
ME (cfs) is a serious and debilitating illness which can affect males and females, children and adults, with devastating consequences for the sufferers, their carers, partners, families and friends.
Sufferers may live alone or with others, may be partly or completely bedbound or homebound, or be able to participate in some limited outside home activities.
They all share a loss of quality of life due to the disabling features of this illness, and face new challenges as they learn how to manage the illness, and modify their lifestyle to adapt to their level of wellness on a daily basis.